Hemophilila

Child Hemophilia Treatment Experience Measure (Child Hemo-TEM)

Copyright: Novo Nordisk

Disease / Condition: hemophilia

Population, Age: children with hemophilia aged 2 to less than 12 years
(respondent: adult caregiver)

Type of Clinical Outcome Assessment: ObsRO measure

Outcomes assessed: treatment burden experience of children with hemophilia

  • Domains (n=1): Treatment experience
    Number of items: 7
    Recall: past two weeks
    Language of Development: English for USA

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    1. Brod, M., Bushnell, D.M., Busk, A.K., Neergaard, J.S. Development and validation of the Child Hemophilia Treatment Experience Measure: A new observer-reported outcome measure. Haemophilia. 2024;1-15. https://doi.org/10.1111/hae.15102.

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  • Contact Mapi Research Trust.

For more information on this measure, for use and/or licensing, contact Mapi Research Trust.

Hemophilia Treatment Experience Measure (Hemo-TEM)

Copyright: Novo Nordisk

Disease / Condition: hemophilia

Population, Age: adult

Type of Clinical Outcome Assessment: PRO measure

Outcome assessed: treatment burden experience of adults with hemophilia

  • Domains (n=5): Injection difficulties, Physical impact, Treatment bother, Interference with daily life, Emotional impact
    Number of items: 26
    Recall: current
    Language of Development: English for USA

    1. Brod, M., Bushnell, D.M., Neergaard, J.S., Waldman, L.T., Busk, A.K. Understanding treatment burden in hemophilia: Development and validation of the Hemophilia Treatment Experience Measure (Hemo-TEM). J Patient Rep Outcomes. 2023 Feb 23;7(1):17. doi: 10.1186/s41687-023-00550-6.

  • Contact Mapi Research Trust.

For more information on this measure, for use and/or licensing, contact Mapi Research Trust.